AAHRPP is
pleased to present a Webinar for the research and HRPP community.
Topic:
|
Partnerships
for Recruiting Research Participants: Patient Advocacy Organizations May Be
Your Best Bet
|
Date:
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Tuesday,
November 15, 2011
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Time:
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2:00
p.m. to 3:00 p.m. ET
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Cost:
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No
registration fee
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Speakers:
|
Beth
Kallmyer, M.S.W., Senior Director of Constituent Relations, Alzheimer's Association
Miriam
O'Day, Senior Director of Public Policy, Alpha-1 Foundation
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Discussion
Moderator:
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Peter
Vasilenko, Ph.D. Chief Education and Evaluation Officer, AAHRPP
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Summary:
|
Recruitment
of research participants can be a challenge, particularly for clinical
trials. This Webinar will highlight successful models of participant
recruitment from two patient advocacy organizations. The TrialMatch program
from the Alzheimer's Association has been very successful in recruiting
participants and matching them to clinical trials related to Alzheimer's
disease and other forms of dementia. The Alpha-1 Foundation is representative
of the rare disease perspective of developing and using patient registries
for those interested in clinical trials. These two approaches are indicative
of models used by many patient advocacy organizations involving other health
and disease conditions. People become involved with these organizations
because they trust them to represent their best interests and provide access
to important research where they feel they can make a contribution as a
participant. Webinar attendees will learn how to approach these types of
organizations and partner with them to recruit participants and move forward
significant and mutually beneficial research.
|
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